Coral Springs residents, Eslin and Mathew Guice, noticed that their daughter, Gianna, was not reaching certain developmental milestones. After taking Gianna to several doctors and specialists, she was diagnosed with Angelman Syndrome, a rare, severe neurological disorder that primarily affects the nervous system. Angelman Syndrome causes development delays, severe speech impairment, intellectual disability, problems with movement and balance, and seizures.
To create awareness and raise funds for research, Eslin and her sister, Erin Cain, are co-chairing the Angels for Angels Charity Ball from 7 to 11 p.m. on Saturday, June 2 at The W Fort Lauderdale, 401 N. Fort Lauderdale Beach Blvd. Guests will enjoy musical entertainment by Rock With U, dinner, dancing and a silent auction with gift baskets, vacation getaways, jewelry and more. WPLG-TV’s Kristi Krueger is the emcee for the evening. Tickets are $125 per person.
Funds raised will directly benefit the Foundation for Angelman Syndrome Therapeutics (FAST), the largest, non-governmental funder of Angelman-specific research in the world. FAST, a registered 501(c)(3), raises money to fuel cutting-edge research and takes an active role in drug development to treat, and ultimately cure, Angelman’s Syndrome. Angelman Syndrome, which affects nearly one half million people in the world, including actor Colin Farrell’s son, has been cured in the laboratory using multiple strategies -- drug activation of the paternal gene, protein replacement therapy and biologics. Advances in Angelman’s research could have affects on patients with Alzheimer’s, ALS, Autism, Rett syndrome, and Fragile X syndrome.